Can You Get SSDI for Chiari Malformation?
TL;DR: Yes. Chiari malformation occurs when brain tissue extends into the spinal canal, causing headaches, balance problems, difficulty swallowing, sleep apnea, weakness, and pain. Chiari I is the most common type in adults. Even after decompression surgery, many people have persistent symptoms that prevent work. The SSA evaluates Chiari under the neurological listings, primarily Listing 11.08 (spinal cord disorders) or 11.17 (neurodegenerative disorders).
Chiari malformation pushes the cerebellar tonsils downward through the opening at the base of the skull, compressing the brainstem and spinal cord. This compression causes a wide range of symptoms because the affected area controls balance, coordination, swallowing, breathing, and the flow of cerebrospinal fluid. Many people also develop a syrinx (fluid-filled cavity in the spinal cord), which causes additional neurological problems.
SSA Listings for Chiari Malformation
| SSA Listing | Condition | Key Requirements |
|---|---|---|
| 11.08 | Spinal cord disorders | Motor dysfunction in two extremities causing extreme limitation |
| 11.17 | Neurodegenerative disorders | Progressive motor or cognitive dysfunction with marked limitation |
| 11.19 | Syringomyelia | If a syrinx is present with documented neurological deficits |
Medical Evidence the SSA Needs
- MRI showing cerebellar tonsillar herniation and degree of descent
- MRI of spine if syringomyelia is present
- CSF flow study showing blockage
- Neurological examination documenting specific deficits
- Sleep study if sleep apnea is present
- Swallowing study if dysphagia is reported
- Surgical records if decompression was performed
- Post-surgical imaging and functional assessment
- Documentation of headache pattern and severity
Common Denial Reasons
- Decompression surgery expected to resolve symptoms. The SSA may assume surgery cures Chiari. Document persistent symptoms post-surgery.
- Chiari I with minimal herniation. Mild tonsillar descent (less than 5mm) may be dismissed. The degree of CSF flow blockage matters more than millimeters of descent.
- Symptoms attributed to other conditions. Headaches and fatigue are common in many conditions. Tie your symptoms specifically to the Chiari with neurological evidence.
Compassionate Allowance
Chiari malformation is not on the Compassionate Allowance list.
Function Report Tips
- Describe headaches: triggers (coughing, straining, bending), location (back of head), severity
- Detail balance and coordination problems with specific examples
- Explain swallowing difficulties if present
- Describe numbness, tingling, or weakness in hands and arms
- Note sleep problems and daytime fatigue
- If you had surgery, explain what improved and what did not
Chiari claims need MRI evidence linked to functional limitations. ClaimPath creates SSA-compliant disability documents for $79, saving the 25% attorney contingency.
Related Condition Guides
Frequently Asked Questions
Can You Get SSDI for Chiari Malformation??
TL;DR: Yes. Chiari malformation occurs when brain tissue extends into the spinal canal, causing headaches, balance problems, difficulty swallowing, sleep apnea, weakness, and pain. Chiari I is the most common type in adults.
What should I know about compassionate allowance?
Chiari malformation is not on the Compassionate Allowance list.
What are the best practices for function report tips?
Chiari claims need MRI evidence linked to functional limitations. ClaimPath creates SSA-compliant disability documents for $79, saving the 25% attorney contingency.